Hillablog

Friday, 03 April 2009

  • Hillary's continued journey.... April 3, 2009

    I was fortunate enough to get to spend a couple of days with my precious little sister and I wanted to share a few pictures and progress reports with each of you.

     

    Hillary came to Nashville to meet with Dr. Peter Konrad, her brilliant (and Mom would say, “Most Precious”) neurosurgeon.  He was extremely pleased with her progress and is ready to take her healing a step further. As he said, “We are going to whittle away at her challenges….one piece at a time.”  In April he will conduct a Baclofen injection trial with the goal of installing a continuous feed Baclofen pump one week later if all goes well with the trial.  The best way to describe what the pump will do is to begin with an explanation of our own “communication system” between a normal brain – (LOL whatever that is) and our spinal cord.  Essentially, our brains communicate with our spinal cord (and cord back to brain) to remind our bodies to “sit erect…stand erect”, etc.  If not, we would be “blobs on the floor” as Dr. Konrad says.  In Hillary’s case, and likely because of static from electrical neurons trying to connect but missing in some ways, her brain keeps saying, “Tighten up on the hand…Tighten up on the left foot….Something is not right here so just do more of it!!!”   Therefore, she over compensates for the misfires and she has what is called spasticity or increased tone to her left wrist/hand and her left foot and ankle.  Consequently oral muscle relaxers are administered in an effort to relax the spasticity. The down sides from these medications are sleepiness, cloudy thinking, and frankly they just don’t do a great job of correcting the problem.  With a direct injection into the spinal column (and core of the deficiencies) the chemistry sets up the right communication and therefore better relaxation and consistency to eliminate the tightness of muscles.  And the elimination of the oral muscle relaxers should have multiple benefits in helping Hillary with improved cognitive clarity.

     

    Additionally, Hillary has begun therapy with a new device called a Bioness on her hand and on her foot.  Her hand immediately improves when wearing the device and her pace of walking was improved in the first session by over 300%.  As she continues the therapy and based on what scientists now know about the plasticity in our brain, the residual affect is expected to carry over in improved physical performance even when the device is off.  Of course the improvements do not come over night. But the more she uses the device, the more the bridging and connecting of neurons continues—like compounding interest on her progress.  And the more her brain makes physical connections the more the brain builds cognitively.

     

    After seeing these exciting new strategies for her future, Hillary and I were off and on our way to a Girl’s Night Out!!  We were going to meet Amy Bowland, Ashley Matthews, McCall Yancy, and Brooke Robertson.  So it was DEFINITELY a Paducah reunion happening in NashVegas.  The good news was Hillary recalled most of the girls we were meeting from her childhood, etc.  She was very excited to get out on the town.  When we arrived there was a set of stairs nothing short of the Titanic’s staircase.  I was so nervous for her but I knew that she just had to climb the stairs on her own. Hillary climbed the stairs and she climbed them well!  I looked over and Hillary was stepping one foot… on one step… at a time.  This is a much faster and a more “normal” approach to walking up the steps and I am so proud of her and her PROGRESS.

     

    The restaurant was very crowded and noisy.  However, it didn’t bother Hillary one bit.  She never once shut down.  (Months ago we would look over and see Hillary with her head resting down on her fisted hand in what we referred to as “shut down mode”.   Thankfully we haven’t seen that in quite a while.  PROGRESS!!!!! 

     

    After dinner we headed back to my house.  She was going to sleep on her old mattress.  I know weird, right?  Well, I have always looooved her mattress so when it was just sitting in storage I felt that it needed some time in Nashville.  Since Hillary was spending the night I thought she would love the chance to sleep in HER BED!  I woke up around 2:30am to her snoring and then again at 5am.  I figured it was a sign that she was sleeping great!

     

    The next morning Hillary was sitting in my car waiting for me to take Vance to daycare.  I got in and I asked, “Did you sleep well on your bed?”  She replied, “Yes.”  I had mentioned to her that she snored and she missed the whole point of my comment.  I wanted her to realize how well she had been sleeping.  Anyway, four hours later she looked at me and said, “I can’t believe I snore….ewww!”  I was thrilled at her comment, because it proved she was remembering something that was short term.  This has been a huge challenge for Hillary but it is getting better all of the time.  I say it is just another sign that she WILL have her life back!  PROGRESS

     

    I have decided whenever Hillary is around I act as if nothing has changed as much as possible.  We both try to act just like we would have two years ago.  So with it being Spring Break and sticking to our “normal routine” I said, “Hillary I think we should try the tanning bed today.”  Hillary, as many of you know, can get as brown as a berry.  She has always loved to be tan.  It makes her feel better.  I mean a Coltharp girl’s motto is tan fat is better than white fat!  I asked her if it went okay and she said it was “perfect!” 

     

    The reason I am telling you about our tanning experience is for what happened later.  Hillary and I were driving back to Paducah early that evening and she looked at me and said, “I can hardly wait for Mom to say ‘Honey, I can tell you have been in the tanning bed…’”  I cracked up laughing and called my Mom immediately.  I told her what Hillary had said and how funny it was that she remembers Mom’s opinion of her daughters and the tanning bed…since she is an employee of the American Cancer Society.  It was great to see and hear Hillary recalling her past moments with Mom just being mom to us.  It was also another short term event that she remembered it happened and made a joke about it hours later J  PROGRESS!

     

    I also took Hill to get her nails done while I called on salons.  I dropped her off and told them to call me when she was ready to be picked up.  When I arrived Hillary was telling everyone in the salon to wear their seatbelts.  She also had the entire room captivated as she shared her story of the three Angels that God sent to save her on the side of the road.  And just for the record….that story, what they looked like, what the Angels said to her….every bit of it has remained the SAME story since Hillary began speaking again. 

     

    So once we arrived to Paducah we had to run by Wally World (Wal Mart).  I dropped Hillary off at the door.  She and her “temp” aka 4 prong cane headed in the front door.  I parked the car and followed in I thought behind her.  As I entered Wal Mart I could not see my sister anywhere.  I asked the guys standing by the carts if they had seen a young girl…..before I could get any more of my question out one of the men said, “Oh yeah….that’s my sweet heart!….she took off!”  Well I would say she did!  I could not see her ANYWHERE!  How fast do these electric shopping carts go these days?

     

    So I headed up the grocery middle isle and decided to just stay put.  This place was a little crazy on a Saturday.  Sooner than later I hear and see her coming.  She says, “Hey!  I have to go get fettucine alfredo and then I will be back”  I was like okay I will just sit right here.  Then up walked a dear friend of mine Shannon Livingston (who was giving birth the NEXT DAY I might add) and then we hear someone say, “Hey Hillary”  Hillary then follows with a “Hey Honeybun!”  Shannon and I were cracking up.   This girl is PRICELESS…..


    She is so amazing!  

     

    Hillary is definitely here for a reason.  She is a modern day testament to the miracles that God can do for us.  She is one of my best friends in the world.  While I will probably never have her back just as she was before the accident….I have her!  She talks, walks, yells, cries, laughs and loves so deeply…..and is finally even beginning to sing from time to time.

     

    I have so many other stories that I could share about my precious and feisty sister.  But I know we are all very thankful for her feistiness ….IT IS what is making her FIGHT!!!!!!!

     

    I hope you enjoy the pics and understand the little side notes with each J

     

    Also, my precious Billy that Mom claims is the BSILE, made a video for his girl.  I made the decision that I was going to post it for you.  I think it will show such relevance to how far she has come.  Then the pics will show this year (where the video leaves off).  I will be willing to take any heat thrown my way because THIS IS OUR LIFE and this is a tragic event that as a family we have all tried to turn positive. 

     

    *****Video will be on here by Monday....I can't figure it out :(  sorry

     

    So I do have a special prayer request.  Since there could be as many as 1500 hits on this post then I think this will work. 

     

    Dear Lord

    Please be with Hillary through her travels to and from her Therapy sessions in Nashville.  Also, God give her the patience, will, and strength to succeed with the Bioness program.  We also pray that she will continue to get well and we are prayerful and hopeful for a 100% recovery.

     

    If other prayers come to your heart for my parents, her caregivers, her son, etc….feel free to ask God to be with each of them.

     

    Again, thank you each for your love, support, and prayers.   Please let everyone know that I am going to try to continuously post at least once a quarter so that you can see and hear of all the PROGRESS!!!!  

Saturday, 03 January 2009

  • Happy 2009 to Our Friends and Family!

    Happy 2009 to Our Friends and Family!

     

     coltharpblurymax

     

    We wanted to share an update with you because we have so much to celebrate.  Early 2008 brought Baby Vance into our lives and he will be celebrating his first birthday in January.  Hillary is absolutely crazy about him as are the rest of us.  He is such a happy baby and so much so that Ashley once called me and said, “Mom, I know I was so horrible growing up but PLEASE don’t wish a terrible baby on me just because I deserve it.”  I said, “Honey…I would NEVER do that!  You were a great baby….just a terrible teenager.  The “wishing on you” regarding Vance is coming later.  Enjoy!”  (Though it is impossible for us to believe he will ever be anything but perfect.)   Ashley and Billy are wonderful parents and its fun to watch these two special people learn to adjust to parenting.  Though Ashley was sure she raised our kids for us, I think she’d tell us now this round is a little more complex than her first rodeo in “raising her siblings”.

     

       

    Hillary continues to be our miracle as she improves every week.  In some ways this year of her recovery feels like it began only yesterday; yet in other ways it seems like it began a life time ago.  In November our girl moved into a brain injury residential facility (which is practically in our neighborhood).  While the move was very hard on her at first, she is finally settling in and trying to understand her time there is necessary and a step in the right direction for optimum therapy and healing.  In some ways it is hard on her because we are so close by.  But the facility is the right place for her without a doubt.  Traumatic brain injury is a 24-7 rehabilitation process, and Paul and I were becoming more of a crutch than what was best for her progress. Hillary’s son visits just about every other weekend and every time he comes home for a visit we see pieces of his radiant smile coming back until it's time to go again.  A friend and caregiver of Hillary’s said it is plain to see our grandson's weekends at home make up for his two weeks away.  We pray that is the case.  He is soooo happy his mommy is finally at her new place, because to him, it is the proof of progress.  It gives him the belief that some day she (and he) will be back to the life they knew before. While their lives are no doubt changed forever, we are grateful for the outcome.  We have our Hillary with no vision problems, no headaches, no hearing loss, no seizures, and no pain.  And though she still struggles constantly with her short term memory, it is getting so much better every day.  The challenges on her left side will hopefully be resolved with a new therapy which uses electrical impulses to "splice" the missing links between her brain and muscles to begin the process of complete hand and foot control.  She will begin that therapy right away in Nashville. We still look at her sometimes and can't believe this has happened and we can't imagine how hard it is on her as she "wakes up" more and more to face her challenges.  Yet every day she finds a way to let her smile transform someone and light up a room with her beauty.  Thanks be to God…and as Hillary will tell you, also to the Angels that saved her by the side of the road.   

     

    Alex finally became legal turning 21 in August.  He celebrated in text book fashion with his sisters and their guys in Nashville.  He’s in his third year at the University of Louisville and working long hard hours at UPS in the brutal midnight to morning hours.  He’s got a great attitude about juggling both work and school and we are proud of him for the under taking.  The Louisville professors are learning a great deal from him, of course. LOL!  We are celebrating six months without Al totaling one of the cars…..though last weeks wreck was just a fender bender.  In truth, we are so grateful he has found his way to safety through all his wrecks and are pretty sure Hillary’s Angels are there for him too. 

     

    Brittany and Josh are engaged and we are thrilled to have sweet Josh in the family.  He’s been around long enough that there should be no surprises as he tries to settle into life as a part of this crazy family.  As we watched Josh help our oldest grandson put together his toys all Christmas Day, we realized once more just how blessed we are by the choices Ashley and Brittany have made for husbands.   

    Paul and I realize for the first time in our lives we are truly empty nesters.  (Well, except for Boomer, of course)  It’s so unbelievable to us to look at each other and realize sometimes we really don’t have anything we absolutely HAVE to do for the first time in our lives. (Except pet Boomer Paul reminded me)   It feels pretty wonderful!                                   

    It also feels really wonderful to have you in our lives.  We are eternally grateful for your prayers and your love  and we know it is the very thing that has brought this family through the hardest year of our lives.  You have moved mountains to a miracle that many thought was impossible 16 months ago. Thank you from the bottom of our hearts.

     

    Happy 2009 and much peace,  love , and joy!

    XOXOXO

     

    The Coltharps

About Me

Hillary Coltharp of Paducah, Ky is a beautiful 26 year old single mother of a precious 6 year old son. On Saturday, September 1, 2007 she was in a terrible one car accident on the way to meeting her family for dinner. This page has been created to keep everyone updated on her recovery.

Chatboard (2)

  • maplehillbnb
    Thank you so much for the update! I still continue to pray for Hillary and to get the update proves that prayer and God are continuing to work his wonder thru Hillary. Such an inspiration to others. Thank you for sharing with us. Sherri
  • KRD3200
    As I sit here with tears running down my face so torn between not having this site to look forward to anymore and so amazed of how much of a journey this has been and how truely blessed I am to have you all in my lives, I have so thankful to God and to everyone who has thought, prayed, and supported
    • Posted 7/4/2008 5:40 PM
    • by KRD3200